Mayor Don Keil proclaims August as Stevens Johnson Syndrome Awareness Month
SEGUIN, Texas – Mayor Don Keil has proclaimed the month of August as Stevens Johnson Syndrome (SJS) Awareness Month in the City of Seguin.
“I didn’t know much about SJS before the Gutierrez family arrived at City Hall to share their story. It’s an awful disease that can affect anyone, of any age,” said Keil.
Two pediatricians discovered SJS in 1922 after a child suffered a severe reaction after taking medication. Today, more than two million Americans receive medical treatment after taking “recommended medications” and experiencing negative effects. This proclamation aims to spread awareness of the deadly disease.
“It’s hard to watch your child go through this at 8 years old. He’s now 11 and been through so much including losing his sight. He’s the bravest kid in the world,” said Kelly Gutierrez whose son Levi contracted SJS in February 2012.
The City of Seguin’s proclamation is one of four that were signed within a week. Gutierrez says it’s been a wonderful experience for her son.
“Levi’s favorite saying is from Super Man: ‘Always a fighter, never a victim’,” added Gutierrez.
Click here to see the official press release.
Posted by: Morgan Ash